Somehow in all this week’s angst of finding out about my tumor progression and learning our cancer center here in OKC is pretty limited on relative clinical trials to treat me – the right doctors, scientists, and advocates for my kind of cancer have presented themselves in divine ways, and I again can barely find words to express how incredible and unreal it is that so many people care for me and put me first on their lists to make things happen. **Special shout out to my mommy, Nurse Nana, Jeannie Jay Wilson Kern who has kicked some serious cancer research ass to find the perfect clinical trial for ME to get into so I can begin treatment ASAP as well as contribute to lung cancer research.** We’ve been blessed MAJOR this week because we were told it would take months to make this happen but no way Jose we have the Lord on our side and in the morning my mom, husband, and I are catching a plane to the Dana-Farber Cancer Institute in Boston, MA to see Dr. Geoffrey Oxnard!!! (who is the author of the best suited clinical trial for my kind of cancer with all it’s special characteristics: EGFR positive, Exon 19 deletion, NF1 positive, T790m negative, low PDL1 expression). I am praying that Dr. O moving his calendar around to meet me Monday on such short notice is a clear indication that we are on the right path to a cure!! Ya ya there’s no known cure but with more research and studies like these, there is nothing written anywhere that I know of that says a California-gone-Oklahoma girl can’t become the first one to be cured of NSCLC!!
Anyways, I will be meeting Dr. Oxnard’s genomic analysis team, doing lab work at 2pm and then meeting with the doctor himself at 5pm Monday. I should have more of an update on what’s next for me then, and hopefully have more to celebrate during Fourth of July celebrations in one of our nation’s most Patriotic cities!
In an uplifting message sent to me earlier this evening, a dear friend hit the nail right on the head about all of this; I will live EVERY day He has ordained for me and that is regardless of any cancer diagnosis. Isn’t that just so true for us all? Go out and live your life! Your days here are not guaranteed and trust me, what you have planned is mostttttt likely not going to be the way it turns out. Anyways, I thought I’d make my kind friend’s prayer known here so everyone can join in on this intentional cal!
***Prayers for safe travels and that I, Jeni, may have rest, peace, and comfort through this unknown (finding a new treatment) time. And that we come out of this with answers we need!*** AMEN!